The UKRR collects, analyses and reports on data from the 70 adult and 13 paediatric renal centres in the UK. Participation is mandated in England through the NHS National Service Specification and the chief executive of each Trust is responsible for adherence to this contract. The UKRR is principally funded through an annual capitation fee levied on renal replacement therapy (RRT) patients; this currently (2019) stands at £27.50 per dialysis or transplant patient in England and £22.50 in Wales and Northern Ireland, and represents less than 0.08% of the average annual cost of treating a person on RRT.
Some projects and collaborations receive funding through linkages with other organisations or grants for research and development. The detailed accounts of the UKRR are provided to the trustees and a financial report is given at the AGM of the Renal Association as required by law.
The UKRR dataset is available in the data area of the UKRR website and defines the data we currently expect to collect. The data are collected via an automatic download from renal centre databases, although this process is changing significantly as more renal centres transition to the UK Renal Data Collaboration (UKRDC).
The data are published annually in the UKRR annual report. The report is used by a variety of stakeholders, but its principal purpose is to act as a source of data for audit and benchmarking against the quality of care standards created by the Renal Association and other organisations. The sources of information (data and reports) held by the UKRR are a shared resource and are used to develop further research into kidney disease and improve the quality of care for renal patients - details on how external researchers or clinicians from non-commercial organisations can access the data are provided on the UKRR website.